Tag: VHL Family Alliance
VHL Family Alliance Announces the First Guide for Kids Dealing with Hereditary Cancer Syndromes: The VHL Handbook Kids' Edition
BOSTON, Mass. /Massachusetts Newswire/ -- The VHL Family Alliance (VHLFA) announced today that the very first "VHL Handbook Kids' Edition" (ISBN: 978-1-929539-02-4) is now...
Boston's VHL Family Alliance Kicks off May Awareness Month, Announcing 8 Events Coast to Coast
BOSTON, Mass. /Massachusetts Newswire/ -- A neoburlesque sci-fi play in Providence, a Crabfest in Maryland, a music festival on Boston Common -- all to...
VHL Family Alliance Announces Free Awareness Benefit Concert in Boston Common May 23rd
BOSTON, Mass. /Massachusetts Newswire/ -- This year VHL Family Alliance will be hosting its first annual special event in honor of International VHL Day,...
VHL Family Alliance Is Partner in Rare Disease Day
BOSTON, Mass. /Massachusetts Newswire/ -- The National Organization for Rare Disorders (NORD) is coordinating the observance of Rare Disease Day in the United States...