Tags VHL Family Alliance

Tag: VHL Family Alliance

VHL Family Alliance Announces the First Guide for Kids Dealing with Hereditary Cancer Syndromes: The VHL Handbook Kids' Edition

BOSTON, Mass. /Massachusetts Newswire/ -- The VHL Family Alliance (VHLFA) announced today that the very first "VHL Handbook Kids' Edition" (ISBN: 978-1-929539-02-4) is now...

Boston's VHL Family Alliance Kicks off May Awareness Month, Announcing 8 Events Coast to Coast

BOSTON, Mass. /Massachusetts Newswire/ -- A neoburlesque sci-fi play in Providence, a Crabfest in Maryland, a music festival on Boston Common -- all to...

VHL Family Alliance Announces Free Awareness Benefit Concert in Boston Common May 23rd

BOSTON, Mass. /Massachusetts Newswire/ -- This year VHL Family Alliance will be hosting its first annual special event in honor of International VHL Day,...

VHL Family Alliance Is Partner in Rare Disease Day

BOSTON, Mass. /Massachusetts Newswire/ -- The National Organization for Rare Disorders (NORD) is coordinating the observance of Rare Disease Day in the United States...

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